Data Sharing at a Crossroads
Ce dossier analyse les enjeux et les défis associés au partage de données génomiques et cliniques à des fins de recherche
Sharing patient-level data from clinical trials can improve the quality of research and our understanding of disease and medical treatments. Various concerns have been voiced about data sharing; they involve privacy, consent, intellectual property, costs, infrastructure, data standards, free-riding researchers, and potentially erroneous conclusions. Many of these concerns cannot be totally eliminated, but they can be mitigated and managed...
New England Journal of Medicine , article en libre accès, 2015